I said when I wrote about our son’s trouble’s there were systemic issues I intended to address. We’ve been busy working on his recovery, adjusting to a new and unexpected way of life and of raising our children. He is is a lot better, we are all a lot better, but the improvements are slow and uneven. So I haven’t done the writing about this that I wanted to, because those things, of course, come first.
But today is World Mental Health Day, and that has given me the impetus to write this post.
The Boy is now out of school, he is learning at home. We are privileged to be in a position where that is an option for us. It isn’t for many people. And this leaves children and their parents exposed to a very real problem – the school system does not recognise anxiety as a legitimate reason for school absence.
If your child is absent from school because of their mental health struggles, that goes down as an unauthorised absence. The same category as truancy. With the same legal ramifications.
Yes. You read that correctly.
I want to tell our story to illustrate how maddening, frustrating and unfair this is. How ignorant it is of the struggles of children who have problems with their mental health.
But I want to be absolutely clear that this isn’t about our school or the individuals we dealt with who – the odd miscommunication aside – were exceptional, who helped us as much as they possibly could. This is about the system that constrained them and us which is wholly at fault.
So, whilst this blog is sort of semi-anonymous, it would take all of 2 seconds to find out who I am and thereby some of the likely schools and individuals involved. Please don’t do that. That is not the point.
Here’s our story, some of which you’ll know if you read my earlier post.
Our autistic son liked school at first, he was really excited about going, but even in the first couple of weeks of attending he had a “meltdown” in the playground when arriving and was unable to attend. He behaved well at school, but his behaviour at home deteriorated, including an increase in the number of meltdowns. The novelty of school outweighed the efforts of masking his struggles for a while, but it didn’t take long for the weight of this equation to shift.
After his first Christmas at school, things began to deteriorate quickly. The meltdowns became more frequent. He became withdrawn. He stopped wanting to leave the house at all. Screens were his only solace. Essentially, he was having a breakdown. It’s 9 months later, he is still not fully recovered from what, for him, was a deeply affecting trauma.
In the early midst of all of this, we were still really hopeful that he would be able to attend school, especially as he’d liked it so much at first and had made a little gang of close friends. We tried to get him in whenever we could. But he was more and more withdrawn. Any mention of school, any suggestion of putting on his uniform, any questions about his day when he got home would trigger his anxiety, sometimes resulting in a meltdown. The journey to school became more drawn out, more avoidance, more tension, more danger.
I want to, briefly, talk about what a meltdown is, because I think that’s important. It’s accepted but, I think, unhelpful language. It makes it sound like a tantrum like any 4 year old might have. A bit shouty and cross because they can’t have their way. It’s much worse than that. A meltdown is essentially a panic attack. He would be in tears, fight and flight mode enacted, visibly shaking, begging with tears in his eyes for us to not force him into school – or worse, at the gate, surrounded by parents and peers, begging us not to make him go in. This is what a meltdown is.
One day, on the way home, he had a full meltdown in a public square on the way home. Insisting his mum stayed far away, attacking her if she didn’t. Close to two main roads busy with cars and buses. His little sister witnessing it all. Aside from his mental health, his physical safety was placed in jeopardy.
It was happening with increasing frequency to the point where we decided he needed some respite and recovery. Apart from anything, this was physically exhausting for him and us. He was ill, he needed time off. Just like if he had flu or the chicken pox, we took the call to keep him at home for the rest of the week to recover.
When the school realised (we had not consciously kept it from them, we’d just said he was ill) he was “not poorly” and that we were keeping him off “just” because of his anxiety we were informed that it would go down as an unauthorised absence.
Of course, we strongly challenged that, but it turned out we had no grounds to do so.
At this point, we had no formal diagnosis of his autism, nor any referral to mental health services (both of which are now in place) – we assumed that this was the issue. And you could sort of understand that. Mental health is a complex thing, especially in children, maybe parents aren’t qualified to self-diagnose absence for reasons of anxiety. I mean, it’s not an argument that holds an awful lot of water because we’re also not qualified to diagnose chicken pox or how severe a cold is “severe” enough to stay off – but it is a sort of argument.
But what was most shocking was in a subsequent meeting we were told unequivocally that even if you have a diagnosis of anxiety from a medical professional, school absence remains unauthorised.
The school checked and double-checked this with the LEA (I suspect because they weren’t sure it was right themselves), and there was no question that this is the policy. Information is sketchy, and in part it will depend on your school and area’s interpretation – but it does appear that to at least some extent, this is a policy applied nationally.
Schools are under enormous pressure in terms of school attendance. Any unauthorised absence reflects badly on them, but for parents, there are potential legal ramifications.
We, of course, made it clear that we would never put our child’s mental health behind the school’s attendance targets in our priorities, but the fact that there is pressure on parents to do so is outrageous. Not all are in a position to argue their case. Not all are fortunate as we were to have an understanding school (and it helped that he was still 4 – so not of compulsory school age.)
I’d ask you to consider the equivalent scenario for an adult:
Imagine (or for many of you of course, recall what it is like) to be suffering from crippling anxiety. Imagine that there is something at your place of work that triggers that anxiety for you, to the extent that when you get to the office, you have a panic attack on your way into reception. This happens on several occasions. You take some time off to recover, with relevant support from your GP or other medical professional.
But your HR department tell you that you just need to work through it, you’ll get used to it eventually – that any absence you have as a result of this is not authorised.
This would of course be illegal and you’d be well placed to sue your place of work for a likely very healthy sum of compensation.
And we are talking here about a 4 year-old. A vulnerable child who has no idea what is going on, or why he feels so scared all the time. Someone who can’t possibly understand why his parents keep trying to make him do something that is so obviously traumatic for him. Somebody who in may ways really wants to go to school but can’t.
Someone who, above all, needs help, support and protection.
This is an essential point. Schools have a clear responsibility to protect the children in their care – just as employers do their employees. They love to talk about safeguarding. And yet here is a policy that does the exact opposite – actively removes protection from children suffering from anxiety.
I was furious when I found out about it. I’m furious now. I don’t know how this isn’t a national scandal. I don’t understand how it can possibly be justified that mental health protections very rightly afforded to adults in their workplaces are intentionally reversed for children unable to attend school.
It’s indefensible. I mean, if you can think of a defence, I’d love to hear it. What possible justification can there be for enforcing school attendance when it is causing trauma, even where that is recognised by a medical professional? It is astounding.
It has to change.
I believe that the beginning of change is to raise awareness of the issue. I certainly was not aware of this until it impacted my family directly. So do please share this post.






In this new series, I intend to review some of my children’s favourite programmes. Mostly the boy’s favourites, because he’s bigger. The girl doesn’t really watch anything yet. What I am interested in is the oft ignored subtext which children, little idiots that they are, are not able discern. They think it’s all fun and games. It isn’t, there’s some weird and dark shit going on.
